Archive for the ‘lupus anticoagulent’ Category

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The paradox of hope and fear

September 1, 2009

Thank you to everyone who gave me feedback on lovenox. I know that many of you brave women inject yourself regularly and I’m in complete awe. I sat with the shot for a good hour until Jack walked in and insisted on doing it. The pain of the needle going in isn’t horrible, it’s more this strange burning sensation once the medicine is inside. And the bruising! I look like someone kicked my stomach in. Still, I am grateful if it’ll help this one stick.

I feel funny today. I’m scared to call it nausea. It’s saliva and its constant and it makes me feel funny. I keep trying to attribute to something else, perhaps I didn’t drink enough water, or slept too little, or maybe its just the way the moon is orbiting. But maybe just maybe its a symptom of pregnancy. A real, live symptom, imagine that. I’m scared to imagine.

My friend said to me I’m not saying its related, but your negative attitude of not accepting congratulations, not wanting to talk about it, saying ‘if’ in terms of the viability of this pregnancy isn’t good. You could negatively affect the outcome. I hope that’s not true. I think its hard for someone who has not dealt with loss to understand my emotions. I don’t like talking about it. I try to find other causes for symptoms I might get. I’m not even signing up for ICLW next month because you have to submit three words to describe your blog and I can’t bring myself to write the P word. I mean, ICLW starts towards the end of September, I don’t know for certain where I will be come September! That probably sounds absolutely horrific, but its true.

BUT-  underneath the doubt, the fear, the anxiety, and the sadness, there is hope. It is a candle on low burning in the darkness. The flames are so small you could doubt its existence were it not for the quiet nights when I lie still and can feel its warmth radiate through my body.  So yes, I am afraid.  I’m deathly afraid. And yes, I don’t want to fucking talk about it because there’s something about hearing my voice travel the sound waves that amplifies this fear in my heart, but no, I’m not feeling hopeless. Why else would I have dared to try again? Each and every one of us IFers are living proof of this paradox. I may live in fear, but I float on hope.

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Fighting Fear

August 29, 2009

I’ve been calm and blase about this pregnancy until yesterday. I think it was the first lovenox injection. Lying down and enduring that painful injection (it hurts more AFTER the injection) it hit me: I’m pregnant. I don’t feel pregnant: no nausea, no tender breasts, no exhaustion of any extreme sort, my acne is gone. As someone with two losses, both in which I felt hardly any symptoms, I don’t like this common pattern. My mom never had extreme symptoms, maybe I’m lucky. Maybe its too early, I’m only 4.5 weeks, but given my background I can’t help but be afraid. I’m trying not to be afraid. I’m trying to prepare myself for a miscarriage and tell myself I’ll be okay if the worst happens but then I fight this urge because surely there is power in positive thinking? I remember Katery talking about not having symptoms in her first trimester and the ambivalent feelings of pregnancy after loss and she is in her second trimester now. So its possible. It’s possible. I want to believe this one will work. I hate my trembling hands when I check for blood when I go to the bathroom. I hate the feeling of inevitability. I know I’m taking lovenox now, the egg is theoretically fresher since I ovulated on time. . . I just can’t shake the fear.  I wish I knew what I could do to ease these worries.  I’m waiting until September 14 for an ultrasound and until then I need to figure out how to cope. I apologize in advance to anyone reading because though I will try to cope, I’m sure there will likely be other fear filled posts like this.

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Lovenox *gulp*

August 28, 2009

After my first loss I asked my doctor to run any tests she had to find out why. She was kind of enough to oblige though I’ve heard some docs won’t run these until three or more. While waiting for these results I got pregnant again. She called me 5 weeks into my pregnancy and asked me to take a baby aspirin because I tested positive for lupus anticoagulent and referred me to a maternal fetal specialist to discuss lovenox. He ordered a series of 15 tests on me.  In the meantime I lost that pregnancy. A few days after the loss I learned my lupus anticoagulent was now negative though there were other numbers that were borderline high. She said next time I got pregnant to get lovenox immediately upon a positive test. True to her word as soon as I called in she wrote me a prescription for lovenox.

I waited to fill my appointment until the next day because I had an appointment with a hematologist. He said he didn’t think lovenox was medically necessary for me and that I should wait two weeks for him to run some more tests on me. I asked him why did I test positive for lupus first go around, and then negative the next go around. He said sometimes lupus anticoagulent follows one pregnancy but not another. I asked him if now I was safe in this pregnancy, he said I can’t be certain. So while he said I didn’t need to take lovenox he did say that if my OB  felt I should, I can go ahead and take it. I began leaning towards taking it since the thought of this lupus thing coming and going like an apparition trying to steal my pregnancies freaked me out. But I still hesitated. Dr. F said not necessary and he’s an expert on all things blood. Jack thought I should wait out the two weeks.

After fretting for sometime someone advised me the obvious: ask you OBGYN. The hematolist may be a blood doc but he works with cancer, this is a recurrent pregnancy loss issue, you should trust the people who work with the preggo people. So I e-mailed my OB-GYN last night and she said she wanted me on it on the advice of the maternal fetal specialist.

I’m freaking out now. I am hoping by listing my fears they’ll seem less scary:

1) Lovenox costs $1,000/month. My insurance covered it this go aroud but I’m switching insurance in October because my job ends. What if the new insurance gives me problems?
2) I got a positive pregnancy test TUESDAY at 13dpo. Now its FRIDAY 16dpo. I didn’t start too late did I? I’m so upset that I waited. I should’ve gone with my instinct and just started stabbing myself with the needles as soon as they were ordered. The hematologist just confused me. UGH. It’s always better safe than sorry.

Nope, still scared. Please don’t let it be too late. Please don’t let it be too late.

Anyone have any advice on how to take Lovenox?